Our journey through autism

Posts tagged ‘sleep’

The Story of Ota (part 2)

Over time Ota didn’t just become a favorite toy. It was more like a sensory comfort. He always liked rubbing it or banging it against his cheek, he stroked its tail every time he took a bottle and clasped on tight to it while he slept. Deep in his sleep his hand would move around until he found Ota’s tail and clasp on it and settle back into sleep, he didn’t wake up or open his eyes, he did this in his sleep.

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Bilal holding Ota's tail while taking a bottle

Bilal holding Ota’s tail while taking a bottle

 

Because of my don’t go out with Ota rule, my mom bought a similar toy cat to be kept at their house so Bilal can play with it there and have it in case he naps or we stay over. That extra cat came along to the trip to the US when I was pregnant with baby brother. He had both cats by the tail on the plane with him and they came along for the our 12 hour car trip to Southern Florida to visit family.

Ota and Twin

Ota and Twin

 

Needless to say Ota has been through a lot, she’s been around longer than Bilal has, she’s been washed and dried countless times, she’s traveled continents. She’s an old little thing… the plastic glass eyes are scratched and chipped, her stuffing has long been unfluffed, her white fur has turned a shade of grey that doesn’t come out in the wash. A few months ago her back was ripped and I stitched it up. Last month her neck was torn and her head was held on by a small part. So I took to taking out all the unfluff, wash it, stuff it with new fluffy fluff, put in a few drops of lavender essential oil for calming effects,  and stitch it back up.

Un stuffed ota

Unstuffed ota

 

 

New fluffy fluff

New fluffy fluff

 

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Stuffed clean lavender scented Ota

Stuffed clean lavender scented Ota

 

Sweet Dreams!

Still sleeping with Ota

Still sleeping with Ota

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Boredom

Its the summer a long vacation with long days, a lot of time to fill up and keep a child occupied, a child that doesn’t know how to fill his time on his own, used to having structure and told what to do. Bilal gets bored quickly and easily. He wakes up and asks to play on the XBox, he plays for a few minutes and then turns it off and turns on the laptop to watch a couple episodes of Power Rangers, he then shuts it and starts pacing around the house, he then asks for the XBox again and so on and so forth. He might play or fight with his little brother we’ll go attend one of his therapies etc but that’s pretty much it. He’s not into arts and crafts or books, so it isn’t easy for me to figure out something for him to do to keep occupied, the weather is hot and indoor activities are usually costly. Summer camps are essential for him and just trying to change it up. A board game or legos, or cards, play doh, a day at the grandparents, a shopping trip etc. I used to get bored easily when I was a teenager and would state quite often “I’m bored!” my mom says I take after my uncle, but we both didn’t pace around the house, I tried to keep occupied by watching TV or reading books but Bilal doesnt keep to anything long enough. He still doesnt use the phase “I’m bored” but his actions say it all.

I’ve seen that a couple people used the search term “summer regression” when visiting my blog, thankfully Bilal doesnt regress during the summer, whatever skills he’s learnt over the year he retains, we also keep up with his weekly therapies so skills are kept intact, its the boredom and behavior issues that arise during the summer or vacations longer than 3 days. He may ignore rules, or fight with his brother more, more frustrated and angry, all something to amuse himself with when he’s bored.

We’ve started summer camp this week, even though its only 3 hours in the morning its something that tires him out and fills a small void in the day. In 2 weeks he starts the YMCA camp which is 7 hours long which I think will be perfect in keeping him occupied and worn out.

Yesterday he had a fever and complained of leg pain, I’m guessing a bad case of growing pains, but he was able to take a 4 hour nap during the day, something he hasnt done since he was a baby. He woke up refreshed, happy, well behaved and really chatty. It was really a recharge boost. His body really needs the naps and the rest I wish he could do it more often, it doesnt have to be a daily thing but every now and then, I believe its good for him. He sleeps about 9 hours or less at night, never naps not even in the car, he only naps when he has a fever and usually just for a little while the 4 hours thing was amazing.

 

Hope ya’ll are having a great fun filled summer.

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