Our journey through autism

Posts tagged ‘pacing’

Walking Around

Walking around or pacing is considered an autistic trait or a form of stimming. Bilal started walking around when he was  two and a half years old. It was a nightly ritual, every evening around the same time he would start pacing around the house back and forth and in circles with this very intense expression on his face, humming, sometimes smiling and totally immersed in a world of his own, he wouldn’t acknowledge us when we called him and if we stood in his way, without really looking at us he would walk around us and go on. When he started daycare at the age of 3, whenever the kids were given free time to pick whatever toy or activity they wanted to do and go do it without teacher instructions, Bilal would instead start pacing, he didn’t know how to play during free time, he had to have the teacher tell him what to do and he’d do it fine no problem.  As he got a bit older he would pace only when he was bored, not nightly. Then when he was 4 if you tried to stop him he would laugh and look at you, if you called him he would reply and then when I asked him what he was doing, he’d say “walking around”. He was no longer deep into it, he was on the surface and I was always trying to find something for him to do, I knew that once he started pacing it meant he was bored and didn’t know what to do with his time.  A few months ago we were at the playground, it was a weekend and crowded most people there were in groups, every child had a sibling or friend. Bilal played a bit on the sets, then tried to initiate a pirate game with the other kids but when they all ran off with their own friends I think he got overwhelmed or just bored by himself, he started walking around the playground with that intense expression on his face, I was pushing his younger brother on the swing and could see him but then his circle took him behind the bathrooms where I couldn’t see him so I quickly scooped his brother out of the swing and quickly got Bilal and went home. I told him at the playground you play on the sets or with someone or we go home, we don’t walk around like that. He kept saying “But I have to walk around” he wouldn’t elaborate and I didn’t get it and worried about him in Kindergarten and beyond.

Recently he was walking around the house so I told him to stop and find something to play with, telling him he had a lot of toys, the computer, Xbox  etc… So he sat down and said, “but now I cant see the pictures”, I tried to have him explain what pictures and what that had to do with walking around, over the next few days his dad and I would ask him about the pictures, and what they were of. He finally explained that he sees Power Rangers his newest favorite show while he’s walking but the pictures stop when he sits down. I’m not sure if he’s replaying show scenes in his head or imagining himself as a Power Ranger but his imagining only works while walking around for some reason, like the movie reel is attached to his legs.

So I told him” You’ve been walking around like that since you were 2, what did you see when you were 2?”

Him: “I don’t know”

Me: “when you were 3?”

Him: “I don’t know”

Me: “when you were 4?”

He: At first, “I don’t know” then he said “camp” but he would not elaborate (could be either the boy scout camp he went to with his father or the summer adapted sports camp he attended.)

Me: “and at 5, its Power Rangers?”

Him: “Yes, I love Power Rangers, its my favorite”

 

So as he’s getting older and more verbal we’re getting little explanations for the things he does and those odd little things are getting less and less intense, I’m actually looking forward to more explanations and understanding what’s going on in there.

 

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The Regression

Previous post mentioned possible early signs that we missed or ignored, here is when we stopped denying to our selves there was a problem, when we noticed regression and when we finally asked doctors for answers. This all started between 2 and half closer to 3 years of age.

Socially – Bilal has 5 cousins from his dad’s side that we used to see occasionally,  Y a boy was 12, MR a girl was 11, MS a boy was 7, and S a girl was just 5 weeks younger than Bilal. Bilal got really excited to see them, and especially loved MS, even though he was older they got along great. He totally ignored S as if she didnt exist, she was larger and taller than him and way more outspoken with a strong personality. Around 2.5 Bilal suddenly seemed afraid of them when they came over and he was unhappy with them being there in his space and playing with his toys, one visit he threw so many crying/screaming fits that I had no choice but to put him to bed early while they were still there. This is when my husband first starting suspecting something wasnt quite right with Bilal, but denial just said it was a phase and its because we dont get to see them enough that lead to his anti-social behavior.

Own world – I was finding it more and more difficult to relate or play with Bilal, the lack of speech was very frustrating for both of us, his only way of communication was to take our hand and lead us to what he wanted and point and go “eh eih”. He wanted to do things his own way which to me didnt make any sense and when I tried to show him he would get angry, I was also pregnant at the time and constantly exhausted so used that as my excuse for lack of trying harder.

Lack of stranger anxiety – No matter where we were and who was around us if I told Bilal not to do something (grab items from the shelves or play with the salt shaker, etc) he would run towards the first person he saw and hug them or throw his arms around their leg, and I mean anyone, store clerks, waiters, friends or acquaintances. It was very disturbing because he opened himself to the danger of kidnapping or molestation and I didn’t know how to make him understand that was inappropriate. Whenever I told him No I would quickly grab his arm and make sure he didn’t turn to anyone.

Pacing – I remember the first time Bilal paced, we were at my parents for the day and after having gotten ready to go with shoes on and all that my dad and hubby started another conversation at the door, Bilal got bored and started running along with humming from the front door of the apartment to the computer room inside. He was really engrossed in just going back and forth I found it odd but thought it was his way to deal with boredom. I didnt see it again for a couple of weeks and then it became a nightly habit, I noticed he paced when he was bored and didnt have anything else to do as it increased I became more and more alarmed but didnt know what to do about it and kinda ignored it and tried to distract him into doing something else.

Picky Eating – Bilal used to accept any kind of food, other than the chance of vomiting he had no trouble with me feeding him. He ate a well balanced diet, he didnt taste chocolate until the age of 2, hasnt yet tasted soda drinks, and I wasnt worried about it, he did eat better and more when we went to my mom’s house but overall no problems, at the age of three he started only wanting to eat white rice, plain toast and a list of other things, rejected a lot of what he previously ate, but I thought that was just a phase and he was testing me and it would soon pass. It hasnt, very limited diet.

Behavior – His behavior kept on getting more and more difficult to deal with, if I told him not to do something he would stand there and scream and scream at the top of his lungs for a few minutes and nothing I could say or do would stop him. I tried it all, time outs, naughty corner, 1, 2, 3, shouting, spanking, removing toys, he didnt care when something was taken from him, the spanking didnt affect him, it was very frustrating and several times I felt like I was at the end of my rope not knowing what to do. He tested me a lot, he would do something he knows is wrong and look at me to see my reaction, he continued to do it even while I was punishing him. His behavior was a bit better with his father or my mother but overall very difficult.

Potty Training – We started potty training at 2 and a half, I had downloaded the Elmo’s Potty Video and he loved it and fell in love with all things Elmo, I had him in nothing but underwear and lots of praise and M&M’s as rewards, within 5 days he was peepee trained and by the end of the month he was poopoo trained we rarely had accidents and everything seemed perfect. 9 months later a month before I’m due to give birth Bilal fell in love with computers, he would be so engrossed with whatever he was clicking at that he’d forget himself and wet himself, this happened a few times and then he started soiling himself as well, and nothing seemed to work, this was a very difficult time for me, this continued on for another month. Now we rarely ever have any accidents of any kind, in underwear all day and at night in a Pull-Up and since he started school its almost always dry in the morning.

Comparison – Like any parent you cant help but compare your kid to some other kid, and this is what I did when we would meet his cousin S, like I said S is just 5 weeks younger than Bilal so they should be very similar developmentally. S was speaking in full sentences, she made decisions, had a strong opinion about what she wanted, she fed herself with a spoon almost flawlessly, she could pedal her bike,  it looked like she was a couple years older than Bilal. It made me very worried but again denial got me through it. S was the youngest of 4, she had 4 older cousins (from her dad’s side) that practically lived with them and they lived in a very social environment and saw a lot of people on an almost daily basis. Bilal on the other hand was an only child that didnt get to see anyone almost at all and would catch up normally when provided the same opportunities as his cousin.

Daycare – When Bilal was 3 years old we were in the US at the time for his brother’s birth, I tried to get him checked out for speech delays but with no insurance and his father working abroad it was difficult to get anything done so we decided to put him into daycare that way he would interact with children his age and be forced to communicate. I placed him in a Bright Horizons branch close by and he quickly got the hang of things and was doing really well. I even attended with him at the beginning and got to see for myself how he reacted and such. He had several classmates who seemed quiet the whole day and barely spoke they were dual citizens and English was their second language so I felt Bilal fit in well with them, he didnt really play with them and on the playground he liked to do his own thing but he didn’t seem to have any problems. The week of Halloween they had a dress up parade and they would trick or treat from class to class with the teachers giving them candy or treats, they all lined up and got super excited to get the little gifts they would grab at them and run on to the next class wanting more, Bilal on the other hand would walk into the class and instead of taking the treat would go explore that classroom until a teacher would take him by the hand to the next class and again he would explore that other class, that day his father finally admitted to himself that Bilal wasn’t normal, wasnt like the other kids at all. I made up the excuse that he’s never seen Halloween before doesnt understand that it’s all about the costume and candy. He was in that daycare for 6 weeks and he had just about started using one word sentences when we went back to Saudi, there I searched for a daycare and found a really good one called Little Scholars we placed Bilal in that and he made slow progress.

Next post I’ll discuss starting speech therapy and hearing “autism” for the first time.

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